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Experts advocate increased awareness, treatment for hemophilia disease

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Experts advocate increased awareness, treatment for hemophilia disease

Prof. Sulaimon Akanmu

 

By Oluwafunke Ishola

Health experts have called for increased awareness on hemophilia disease to prevent and control the disorder.

The experts made the call on Thursday, during a virtual media round table organised by Pfizer to commemorate World Hemophilia Day.

The World Hemophilia Day (WHD) is celebrated annually on April 17, with a call to action for governments to improve access to treatment and care with an emphasis on better control and prevention of bleeds for all people with bleeding disorders.

The theme for this year’s event is: “Access for All: Prevention of bleeds as the global standard of care”.

Hemophilia is a rare genetic bleeding disorder that causes the blood to take a long time to clot due to a deficiency in one of several blood clotting factors.

According to the World Federation of Hemophilia (WFH), an international not-for-profit organisation, more than 38,000 people worldwide are living with hemophilia B in 2021.

 

Professor of Hematology and Blood Transfusion, Sulaimon Akanmu, of the  Lagos University Teaching Hospital (LUTH), Idi-Araba, called for innovation in access to hemophilia treatments for patients.

He said that hemophilia tends to occur in males due to inherited X chromosomes from the mother.

“People with hemophilia are at risk for excessive and recurrent bleeding from modest injuries, which have the potential to be life threatening.

“People with severe hemophilia often bleed spontaneously into their muscles or joints, or rarely into other critical closed spaces such as the intracranial space, where bleeding can be fatal,” he said.

Akanmu, however, said that knowledge and diagnosis of hemophilia was low among the population and even healthcare workers.

According to him, this is responsible for underdiagnosed hemophilia cases in the country.

“We have lots of work to do to increase awareness of hemophilia among the general population because lots of male children are dying at a young age.

“The moment you sever the umbilical cord and that spot is oozing blood for too long or not healing on time. You can suspect hemophilia.

“Hemophilia Federation of Nigeria is taking steps to sensitise pregnant women and healthcare workers at health centres on the existence of hemophilia and how to identify it in children at young ages,” he said.

The professor further said that the World Federation of Hemophilia (WFH) was working in partnership with hemophilia treatment centres in 29 African countries to share knowledge and build global awareness through information exchange, education and training.

He noted that the WFH provided about 24 million units of clotting factor concentrates per year to patients in sub-Saharan Africa through humanitarian aid programmes.

He added that Pfizer was a visionary partner of the World Federation of Hemophilia for WHD.

 

Dr Vivian Painstill

 

Dr Vivian Painstil, the Senior Specialist Paediatrician, Komfo Anokye Teaching Hospital, Kumasi, Ghana, said managing hemophilia could be challenging while people with the disease could leave fairly normal lives with certain precautions to prevent and control bleeds.

“The burden people living with hemophilia B face is significant. Many receive routine infusions or injections which can interfere with their ability to take part in day-to-day activities that others take for granted,” Painstil said.

She called for collaborative efforts to improve diagnosis, affordable treatment, social support and awareness for hemophilia.

Also, Mr Kodjo Soroh, the Medical Director, sub-Saharan Africa, Pfizer, said Pfizer’s goal was to ensure patients living with hemophilia are seen, heard and never forgotten.

Soroh said that Pfizer would continue to work tirelessly to find breakthrough solutions and therapeutic options to change the lives of people living with hemophilia.

“Pfizer’s efforts at advancing treatment for hemophilia and bridge gaps in access to care resonates with this year’s theme of the WHD Access For All: Prevention of Bleeds.

“Pfizer’s commitment to equity and continued investment in hemophilia is evident in its more than 30 years of experience in developing therapies for hematological disorders as it has a deep understanding of the significant challenges that people living with the disease continually face,” he said.

The medical director, therefore, said Pfizer would continue to amplify and celebrate the work of the global hemophilia community as it created awareness on the need for innovation in access to hemophilia treatments

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Bank Cannot Freeze Customer’s Account Without Valid Court Order — Zarewa

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A legal practitioner, Mr M. D. Zarewa, has said that a bank cannot freeze or restrict a customer’s account without a valid court order.
Zarewa said it was prevalent in the society for law enforcement agencies to give directives to banks to freeze customers’ accounts whenever there was a pending case before them, adding that banks often complied with such directives.
He, however, said such practice was alien to Nigeria’s jurisprudence, stressing that banks were enjoined not to interfere with or restrict the activities of any customer’s account without a valid court order.
According to him, it is trite law and settled beyond argument that a bank cannot freeze a customer’s account without a valid court order.
He said the position was entrenched in the case of GTB Plc v. Olachi & Anor (2025) LPELR-81833(CA), where the Court of Appeal held that “whether frozen or restricted, neither can be done without the valid order of a Court of Law.”
Zarewa further cited GTBank v. Adedamola (2019) 5 NWLR (Pt. 1664) 30 at 43, Paras. E-F, where the court held:
“Before freezing customer’s account or placing any form of restraint on any account, the bank must be satisfied that there is an Order of Court.
“By the provisions of Section 34 of the Economic and Financial Crimes Commission Act 2004, the Economic and Financial Crimes Commission has no power to give direct instructions to banks to freeze the account of a customer without an Order of Court. So doing, constitutes a flagrant disregard and violation of the rights of a customer.”
The lawyer said any customer whose account had been frozen or restricted without a valid court order could institute a suit against the bank for grossly violating his or her rights.
He said such a customer could particularly seek redress for the violation of the right to own movable and immovable property and seek compensation from the court.
Furthermore, Zarewa said the law was trite that where there was a wrong, there was a remedy, as captured in the Latin maxim, Ubi jus ibi remedium.

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Gov AbdulRazaq Inaugurates 464-Unit Housing Estate In Kwara

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Stephen Olufemi Oni, Ilorin

​‌‌‌‍‍​‍⁠⁠‍​​⁠​⁠Kwara State Governor AbdulRahman AbdulRazaq has inaugurated the ‘AbdulRahman AbdulRazaq Morire Housing Estate’ in Ijagbo, Oyun Local Government Area of the State.

Speaking at the groundbreaking of the housing estates, which included 210 units of two-bedroom terrace apartments, 200 units of three-bedroom units and 54 units of four-bedroom terrace duplexes, the
Governor, noted that housing should not be seen or regarded as a luxury, but rather as a fundamental human requirement and cornerstone of dignity, security, and family stability, lamenting the daunting challenge of addressing housing deficits across the country.

He said: “Dear Kwarans, housing is not a luxury. Basic housing is a
fundamental human need and a cornerstone of dignity, security,
and family stability. Yet, across Nigeria and indeed in Kwara State,
the challenge of addressing housing deficit is daunting.

“This administration believes that inadequacy of proper shelter
for Nigerians is not merely a problem of not building enough
houses. Indeed, several studies have attributed the housing deficit in Nigeria to a complex mix of causes, key among them being high costs and rising costs of building materials, weak finance, difficult land systems, infrastructure gaps, institutional limitations, among others.

“On behalf of the people of Kwara, I thank the management of ISHI
Homes Limited for this partnership and for choosing Kwara State
as the location for this important development.”

Represented by the Commissioner for Housing and Urban Development, Dr Segun Ogunsola, the Governor applauded the developer for recognising his administration’s contributions to mass housing development in the State.

“The administration has consistently placed housing development high on its agenda. The government recognises access to decent and affordable housing as essential to the wellbeing of the people.

“The State Government has also been in active collaboration with
institutional partners including the Federal Ministry of Housing
with a view to increasing housing stock in the State.

“Recently, we acquired a housing estate with over 130 flats at
Ogbondoroko in Asa LGA of the State. Government has approved
that the estate be onboarded onto the administration’s social
support scheme,” he disclosed.

AbdulRazaq said the commitment was reflected in the development of the Kwara Smart City and other mass housing initiatives across the State.

The Governor disclosed that his reforms in land administration have reduced the processing time for Certificate of Occupancy (C of O) from 180 days to 35 days.

AbdulRazaq said the improved turnaround time demonstrated the administration’s commitment to making land administration more transparent, efficient and investor-friendly.

Earlier in his remarks, the Chief Executive Officer (CEO) of ISHI Homes, Dr Olayinka Ilufoye, said the project was intended to democratise home ownership and make decent and affordable housing accessible to the people of Kwara South senatorial district.

Ilufoye said the estate was meant for civil servants, traders and other Nigerians who can access it through the National Housing Fund (NHF).

“The name AbdulRahman AbdulRazaq Morire, which translates to ‘I have seen goodness’, is a deliberate expression of our faith, hope and expectation.

“We believe this estate will become a testimony of prosperity, progress and abundance in Kwara South,” he said.

Ilufoye pledged that the company would remain committed to transparency, accountability, quality construction and timely delivery.

The Executive Chairman of the Kwara State Geographic Information Service (KWGIS), Alhaji Sulyman Abdulkareem said the state government has consistently placed housing development high on its development agenda.

He commended the state government for ensuring access to land, facilitating the prompt issuance of titles and certificate of occupancy.

Abdulkareem pointed out that by providing timely approval for mortgage transactions, the Governor is creating the conditions necessary for housing development to thrive in Kwara State.

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Scholars Hail Late Sheik Kamalu-deen’s Legacies iN Education, Leadership

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Stephen Olufemi Oni, Ilorin

Nigeria, and the world at large, are in dire need of exemplary leaders like the late Founder of the Ansarul Islam Society of Nigeria, Sheik Muhammad Kamalu-deen al- Adabbiy.

This was the submission of various scholars at a media briefing in ilorin, the Kwara State capital, to usher in the Society’s week-long activities to commemorate the 100 years of the establishment of the Az-Zumratul Adabiyatul Kamaliyyah School of Arabic and Islamic Studies, in Okekere, Ilorin.

The school was fouded by the late Sheik Kamalu-deen in 1942.

Born in 1905, the late Sheik Kamalu-deen was one of Nigeria’s foremost Islamic scholars and educational piooneers who transformed deep Islamic religoius learning into education and also advocated the acquisition of western education .

He also served as a Councillor and Member of the Ilorin Native Authority Transition Committee between 1958 and 1961and was appointed as the first grand mufti of Ilorin by the Emir of Ilorin.

The late Kamalu-deen al- Adabbiy died in 2005 at the aged of 100 years, leaving behind impactful legacies in the propagation of Islamic religion, scholarship, education and leadership.

Addressing journalists at the ancient hall of the Az-Zumratul Adabiyatul Kamaliyyah School of Arabic and Islamic Studies in Okekere, Ilorin, the spokesperson, Prof Kamil Kamaldeen, said the late sheikh was “non discriminatory” in all his policies, a virtue he said was lacking in most leaders today.

“We are here to celebrate the legacies of the late Sheikh Muhammad Kamalu-deen al-Adabbiy not to tell his history, at a time when the world continues to need what he stood for. We are in a world today that we are looking for leaders who will serve without puting themselves first, no matter where we come from,” he said

The Registrar was flanked by the Vice Chancellor of the Muhammad Kamalu-deen University, Prof AbdulRasheed Jimoh, General Overseer of the Az-Zumratul school, Sheik Mustapha Kamalu-deen al- Adabby, Grand Khadi of the Kwara State Sharia Court of Appeal, Justice Abdulateef Kamaldeen, National Missioner of Ansarul Islam Society of Nigeria, Sheik Abdulmumini Ayara, retired Grand Khadi of the Kwara state Sharia Court of Appeal, Justice Idris Haroon and a foremost islamic Scholar, Sheik Sharafadeen Ajara .

Others included the President of Az-Zumratul alumni association, Ustaz Abdullahi Oni-Tolotolo, and the Principal of the School.

They noted that the late Sheikh Kamalu-deen had through his preachings, established educational structures and selfless leadership qualities, produced worthy ambassadors in all spheres of disciplines, urging leaders at all levels to invest heavily in education .

“No society loses from investing in education, it can only gain, no society loses when you build skills, you can only gain,” they added.

The Scholars also charged leaders to take a cue from the late Sheikh Kamalu-deen whom they said was always willing to collaborate with scholars and leaders of like minds in a bid to bring advancement and progress to his community, citing his link with Al-Ahhar University, Cairo, as beneficial in advancement of higher Islamic studies in Ilorin.

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